ESCAPE to Thrive 2018 Presenters:
Shelley Fuld Nasso, MPP, is Chief Executive Officer of the National Coalition for Cancer Survivorship. She serves as a member of the National Cancer Institute’s National Council of Research Advisors, the American Society of Clinical Oncology’s Cancer Survivorship Committee, and the National Quality Forum’s Measures Application Partnership. Prior to joining NCCS, Shelley served in leadership roles at Susan G. Komen, where she leveraged the strength of Komen’s grassroots network to strengthen the organization’s reputation and visibility in Washington, D.C., and in state capitals. Shelley has also served as Director of Community Philanthropy at The Dallas Foundation and held management positions at communications and technology enterprises. She is a graduate of Rice University and holds a Master of Public Policy from the Harvard Kennedy School. Shelley’s commitment to the work of NCCS is strongly tied to the experiences in the cancer care system of her dear friend, Dr. Brent Whitworth, a beloved physician diagnosed with stage IV cancer days before his 42nd birthday. Through Brent’s battle, Shelley witnessed the strengths and flaws of the cancer care system and embraces the notion that policy change can directly benefit patients and caregivers going through this journey.
TJ Johnson, Mr. Johnson joined HTG Molecular Diagnostics in 2008 as Chief Executive Officer and has led the company’s transition from a boutique research company to a growing personalized healthcare based company. Mr. Johnson has lead the efforts to establish the key business strategies and hire a management team with over 200 years of combined diagnostic experience.
In this role TJ has driven the optimization and extension of HTG’s core technology into new products such as the HTG EdgeSeq automation platform allowing the company to compete in the fast growing personalized healthcare, diagnostic/clinical application markets.
Prior to joining HTG Molecular TJ spent five years as a SVP for Ventana Medical Systems now Roche Tissue Diagnostics. He is a founding member of the BioScience Steering Committee and an active angel investor through the Tucson Desert Angels. TJ graduated with a business degree from Indiana University in 1983.
Mary S. McCabe, R.N., M.A., is the past Clinical Director of the Cancer Survivorship Center at Memorial Sloan-Kettering Cancer Center (MSK). From 2003 through 2016, she was responsible for developing and implementing a center-wide program and services for cancer survivors focused on research, clinical care, professional training and education. She was also a faculty member in the Division of Medical Ethics at the Cornell Weill Medical College and Chair of the MSK Ethics Committee where she remains a consultant in medical ethics. A graduate of Trinity College, Emory University and Catholic University, she was previously the nursing director at the Lombardi Cancer Center, Georgetown University in Washington, DC, and held several positions at the National Cancer Institute (NCI) before joining MSK. Ms. McCabe has served on many committees, including the Committee on Improving the Quality of Cancer Care at the Institute of Medicine, the Survivorship Steering Committee of the American Cancer Society, the National Comprehensive Cancer Network Survivorship Panel, the NCI Clinical Trials and Translational Research Advisory Committee and is the past chair of the American Society of Clinical Oncology (ASCO) Survivorship Committee. She has received numerous awards, including the American Cancer Society Merit Award, Oncology Nursing Society Leadership Award, NIH Outstanding Performance Award, NIH Director’s Award and the Outstanding Alumnae Award, Emory University. In 2016 she received the Leonard Rosen Memorial Research Award given by Children’s Cause for excellence in Cancer Survivorship research.
Sherri Romanoski, is a cancer survivor and the founder of BAG IT, a non-profit organization that provides newly diagnosed cancer patients and their families with helpful resources for coping with diagnosis and treatment. BAG IT has helped 70,000 people with cancer since 2003. Its vision is to empower patients to be more engaged in their care, advocate for themselves, and learn to cope with the challenges associated with diagnosis and treatment. Further, BAG IT empowers cancer advocates to promote this same vision in their communities. Sherri developed and launched ESCAPE to Thrive Leadership Conference for Cancer Advocates in 2010, an innovative approach to advocacy support.
In addition to working in patient advocacy for 14 years, Sherri has 10 years of experience as a behavioral health educator and 22 years as a classroom teacher. Her patient advocacy experience includes Department of Defense research review, clinical trial and cancer research proposal review at the University of Arizona Comprehensive Cancer Center, patient advocate on the Scientific Advisory Board for the University of Arizona Comprehensive Cancer Center NCI Review, Quality of Life and Treatment committees member for the Arizona Cancer Coalition, and Advisory Board member for the GWU PCORI GATE Project.
Alicia Staley, is the Director of Patient Engagement at Science 37. She is a three-time cancer survivor, first diagnosed with Hodgkin’s disease as a sophomore at Syracuse University. After 15 years in software design and information systems management, Alicia began to apply her engineering background to improve the patient experience for those dealing with cancer.
With an extensive network of patient advocates and non-profit organizations, she collaborates with a wide range of stakeholders to help improve processes and policies that impacts cancer care.
An early adopter of social media, she co-founded #BCSM, which attracts over 250 global participants each week to its scheduled online discussions. Since its launch, #BCSM has been showcased at SXSW in 2013, 2014, and 2015, and is recognized as the gold standard for disease-specific Twitter chats.
She regularly speaks at conferences throughout the US. She has presented at Livestrong’s Rev2014, American Society for Breast Surgeons Annual Meeting, South by South West Interactive Conference (SXSW), 140 Boston, and Social Media for Pharma. As an inspirational speaker, Alicia reaches many different audiences, providing insight into life as a 25+ year cancer survivor.